flooding through me in such a short period of time.
This morning when I arrived to visit with Zaria I found her doing
fairly well. Soon Dr Yup (go ahead, it is fun to say his name)
descended upon me requesting a meeting with Luke and I as soon as
possible to discuss the open ductus.
Before Luke arrived I had the opportunity to change her diaper (teeny
little thing but full of poop! breast milk is getting through her
gut), swab out her mouth with colostrum, and feed her again. --so
cool
Luke showed up a couple hours later and the doctor in his
straightforward and intense manner explained to us that surgery was
really the only option and it should happen asap. Also the surgeon
was leaving town until next week so if we could make a decision and
perhaps have it happen today.
You are welcome to look up this fairly common surgery yourselves as I
would probably butcher and really don't have the energy to explain all
the details. The important aspect is that Zaria's PDA was very wide
open, probably would not close on its on, didn't want to risk another
round of meds b/c of the possibility of more bleeding on the brain and
he really thought we should be getting more nutrition in her (but we
couldn't b/c of the ductus). He of course got off track and bowled us
over with other likely hardships to come but eventually demanded an
answer. Of course we agreed, headed home for about an hour break
before coming back to await surgery.
It was all so intense but she made it through with flying colors. She
has a titanium clamp to stop up the ductus and her levels have been
superb since the surgery. Everyone was smiling and excited in NICU
after the success and we hear that much of what she has been
experiencing will level out and she will be able to stop fluctuating
in her 'numbers'.
I am exhausted but thrilled with today's success but know that there
will be plenty of other hard days to come. I do think we have a
little miracle child and am so appreciative to all the awesome support
and love that us and Zaria have received. take care and more saga to
come....
This morning when I arrived to visit with Zaria I found her doing
fairly well. Soon Dr Yup (go ahead, it is fun to say his name)
descended upon me requesting a meeting with Luke and I as soon as
possible to discuss the open ductus.
Before Luke arrived I had the opportunity to change her diaper (teeny
little thing but full of poop! breast milk is getting through her
gut), swab out her mouth with colostrum, and feed her again. --so
cool
Luke showed up a couple hours later and the doctor in his
straightforward and intense manner explained to us that surgery was
really the only option and it should happen asap. Also the surgeon
was leaving town until next week so if we could make a decision and
perhaps have it happen today.
You are welcome to look up this fairly common surgery yourselves as I
would probably butcher and really don't have the energy to explain all
the details. The important aspect is that Zaria's PDA was very wide
open, probably would not close on its on, didn't want to risk another
round of meds b/c of the possibility of more bleeding on the brain and
he really thought we should be getting more nutrition in her (but we
couldn't b/c of the ductus). He of course got off track and bowled us
over with other likely hardships to come but eventually demanded an
answer. Of course we agreed, headed home for about an hour break
before coming back to await surgery.
It was all so intense but she made it through with flying colors. She
has a titanium clamp to stop up the ductus and her levels have been
superb since the surgery. Everyone was smiling and excited in NICU
after the success and we hear that much of what she has been
experiencing will level out and she will be able to stop fluctuating
in her 'numbers'.
I am exhausted but thrilled with today's success but know that there
will be plenty of other hard days to come. I do think we have a
little miracle child and am so appreciative to all the awesome support
and love that us and Zaria have received. take care and more saga to
come....
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