Zaria was finally resting better today. They have her on a slow drip
pain med with occasional doses of morphine. I did not see her cry
during the 4 hour visit I spent with her today. An EEG was performed
to look for any seizure activity (there was some varying signs of
this) but all results were normal. She also had a head ultrasound
today and no more bleeding or damage was found with the brain.
Our big hurdle will probably be the short gut syndrome that she was
left with after the surgery took away over 50percent of her gut. The
surgeon was hopeful that she would regrow some length and surface area
so more nutrients will be absorbed when we resume feedings. In the
meantime she gets her nutrients from TPI and lipids. Unfortunately
long term use of the IV fluid TPI can damage the liver (although this
can also be reversed).
Luke returned for his early evening visit and his voice opened her
eyes to look at her papa. He told her that it was her mama's birthday
and he saw her smile.....
pain med with occasional doses of morphine. I did not see her cry
during the 4 hour visit I spent with her today. An EEG was performed
to look for any seizure activity (there was some varying signs of
this) but all results were normal. She also had a head ultrasound
today and no more bleeding or damage was found with the brain.
Our big hurdle will probably be the short gut syndrome that she was
left with after the surgery took away over 50percent of her gut. The
surgeon was hopeful that she would regrow some length and surface area
so more nutrients will be absorbed when we resume feedings. In the
meantime she gets her nutrients from TPI and lipids. Unfortunately
long term use of the IV fluid TPI can damage the liver (although this
can also be reversed).
Luke returned for his early evening visit and his voice opened her
eyes to look at her papa. He told her that it was her mama's birthday
and he saw her smile.....
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